Elinor Cleghorn

A trailblazing, conversation-starting history of women's health--from the earliest medical ideas about women's illnesses to hormones and autoimmune diseases--brought together in a fascinating sweeping narrative. Elinor Cleghorn became an unwell woman ten years ago. She was diagnosed with an autoimmune disease after a long period of being told her symptoms were anything from psychosomatic to a possible pregnancy. As Elinor learned to live with her unpredictable disease she turned to history for answers, and found an enraging legacy of suffering, mystification, and misdiagnosis. In Unwell Women, Elinor Cleghorn traces the almost unbelievable history of how medicine has failed women by treating their bodies as alien and other, often to perilous effect. The result is an authoritative and groundbreaking exploration of the relationship between women and medical practice, from the wandering womb of Ancient Greece to the rise of witch trials across Europe, and from the dawn of hysteria as a catchall for difficult-to-diagnose disorders to the first forays into autoimmunity and the shifting understanding of hormones, menstruation, menopause, and conditions like endometriosis. Packed with character studies and case histories of women who have suffered, challenged, and rewritten medical orthodoxy--and the men who controlled their fate--this is a revolutionary examination of the relationship between women, illness, and medicine. With these case histories, Elinor pays homage to the women who suffered so strides could be made, and shows how being unwell has become normalized in society and culture, where women have long been distrusted as reliable narrators of their own bodies and pain. But the time for real change is long overdue: answers reside in the body, in the testimonies of unwell women--and their lives depend on medicine learning to listen.

A trailblazing conversation-starting history of women's health--from Ancient Greece to hormones and autoimmune diseases--brought together in a fascinating sweeping narrative In thirteenth-century Europe, Roman Catholicism decreed that menstruation was the curse of Eve, part of the punishment issued by God to all earthly women. In the 1860s, female circumcision was considered a respective cure for misunderstood diseases including endometriosis and epilepsy. At the University of Oklahoma School of Medicine, between 1950 and 1954, three women aged twenty-eight, thirty-two, and forty-three and identified only as housewives, underwent prefrontal lobotomies as cures for ulcerative colitis. Initial clinical trials of birth control were conducted in Puerto Rico, on some of the poorest residents of the United States. Of those who participated in the trial, many suffered debilitating side effects and three died--but their deaths were never reported in the subsequent release of the pill. In Unwell Women, Elinor Cleghorn explores this almost unbelievable history of how medicine has failed women, and shows how the legacy of disenfranchisement and discrimination is alive and well in the contemporary relationship between women and sickness. When Cleghorn was finally correctly diagnosed with an autoimmune disease after years of being told her symptoms were anything from psychosomatic to a possible pregnancy, she was inspired to unpack the roots of the perpetual misunderstanding, mystification, and misdiagnosis of women's bodies. The result is an authoritative and groundbreaking history of the relationship between women and medical practice, from the wandering womb of Ancient Greece to the rise of witch trials across Europe, and from the dawn of hysteria as a catchall for difficult-to-diagnose disorders to the first forays into autoimmunity and the shifting understanding of hormones, menstruation, and menopause. Packed with character studies and case histories of women who have suffered, challenged, and rewritten medical orthodoxy--and the men who controlled their fate--this is a revolutionary examination of the relationship between women, illness, and medicine. With these case histories, Elinor pays homage to the women whose bodies were sacrificed to make strides in this still-evolving area of medicine and to show how far we still have to go in terms of understanding the female body.

'We are taught that medicine is the art of solving our body's mysteries. And as a science, we expect medicine to uphold the principles of evidence and impartiality. We want our doctors to listen to us and care for us as people, but we also need their assessments of our pain and fevers, aches and exhaustion to be free of any prejudice about who we are, our gender, or the colour of our skin. But medicine carries the burden of its own troubling history. The history of medicine, of illness, is a history of people, of their bodies and their lives, not just physicians, surgeons, clinicians and researchers. And medical progress has always reflected the realities of a changing world, and the meanings of being human.' In Unwell Women Elinor Cleghorn unpacks the roots of the perpetual misunderstanding, mystification and misdiagnosis of women's bodies, and traces the journey from the 'wandering womb' of ancient Greece, the rise of witch trials in Medieval Europe, through the dawn of Hysteria, to modern day understandings of autoimmune diseases, the menopause and conditions like endometriosis. Packed with character studies of women who have suffered, challenged and rewritten medical orthodoxy - and drawing on her own experience of un-diagnosed Lupus disease - this is a ground-breaking and timely exposé of the medical world and woman's place within it.