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crybabybea commented on Alanna's review of The Invisible Kingdom: Reimagining Chronic Illness
While this book draws on a lot of personal research, it should be approached as an act of memoir. The book is at its best when the author is discussing what is within her personal realm of experience. This includes: her personal experiences of illness and responses from her care practitioners, discussions of illness as metaphor and how that affects approaches to care, her specific experiences as an upper-middle-class white woman, and her explorations of alternative treatments and their appeal to those suffering from illnesses that cannot be easily understood. I found these parts validating. I, too, am an upper-middle-class white woman suffering from multiple intersecting autoimmune conditions and found this part relatable. In particular, I appreciated the discussion of autoimmunity in the context of self vs non-self and the way that framing autoimmunity in this way can place responsibility on individuals for their disease. This was a real perspective shift that I will take forward with me. I do find it concerning when books like this, which will often be sought out by ill people looking for answers, discuss alternative and âcontroversialâ treatment practices without actually digging into the controversy around those treatments. The line between memoir and treatment recommendation can become quite blurry. Where does the authorâs discussion of her own experiences end, and the platforming and advertisement of treatments that may not have medical value begin? However, itâs when the author tries to step beyond her personal experiences that the book begins to really struggle. There is no discussion of disability in this book, which limits the author's ability to truly dig into the structural and cultural impacts of illness and disease. In the same way that the author discusses the distance the well can feel with those experiencing illness, her wealth and privilege allow her to distance herself from identifying with disability. Moreover, while the author occasionally discusses racial and class inequities that can contribute to illness, these discussions feel surface-level, because the author has no personal experience with this. While she mentions putting expensive specialists, alternative medical treatments and supplements on her credit cards, she appears to have a robust support system that allows her to do so, and her interaction with the medical system is coloured by this.â¨â¨ The book also struggles when it tries to apply the authorâs narrow view of illness to âsolutionsâ. This is when the neoliberal perspective of this book becomes most clear. The challenges of coordinating complex care across a fragmented and financially driven healthcare system are attributed to doctorsâ failure to âunderstand marketing, economics, and sales tactics,â not the financial constraints placed on care. The harrowing effects of widespread long-term chronic illness, represented by Long-Covid are explored merely through the economic perspective of lost productivity, ill workers and the financial strain on the healthcare system. The more direct solutions offered, like coordinated Autoimmune centres that mirror existing Cancer care centres, are promising, but discussed without any reflection on which types of people can access the expensive, specialized care these facilities offer under a for-profit healthcare system. If you are struggling with a poorly understood illness, you might find some value in this book, but for me it fell far short of what a real discussion of autoimmunity, disability and care should be.
crybabybea commented on a post
This is a book that Iâll remember for a long time and itâs impacted me
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crybabybea commented on a post
My sister-in-law was rewatching the movies for the first time in years, absolutely floored by the actual plot and how much she forgot. Then, she told me sheâd NEVER read the books, and obviously I said âTheyâre a train wreck, you need to read them.â So weâre starting a buddy-read! Iâm excited to introduce her to the chaos that is the Twilight book đŤśđź
Post from the White Tears/Brown Scars: How White Feminism Betrays Women of Color forum
this chapter directly tying the bad faith "save the children" argument to white supremacy AND ALSO to the way that people infantilize and stereotype marginalized groups and pit them against each other to shift conversations away from racism/systemic change AND how that response plays into the "white damsel" mentality and serves to reinforce the "angry brown people" stereotype WHEWWWWW To fight it, we have to first name it. I donât know how else to deal with this kind of professional gaslightingâor what we could call in these circumstances âgas-whitingâ, because it involves deliberate attempts to subvert the reality of people of colour. These arguments are not made in good faith. They are about winning the fight, setting the agenda, shutting down the other side.
crybabybea commented on a post from the Pagebound Club forum
I have been on Pagebound for a few months now and I genuinely think that Pagebound is such a wonderful idea come to fruition. Iâve been using other bookish apps for years and never felt inclined to post written reviews when Iâm done with the books (I feel too intimidated sometimes especially when I feel differently about the books and the book community can be harsh đ°). But on Pagebound, the no pressure ability to post my thoughts at random intervals throughout the book helped me develop the confidence to post reviews on the books I finished reading as well and Iâm starting to find joy in that. Iâm glad I stumbled upon this site. Itâs been magnificent and the community is amazing. Thank you so much!! âşď¸
crybabybea commented on horseheaux's update
crybabybea commented on a post
The language of the White Saviour is not one of liberation or sisterhood: it is a language of imperialism. Nothing gives away a White Saviour Complex like white women rallying to âsaveâ brown women despite the gruesome history of what âsavingâ has entailed. White women have to free themselves from the lingering notion that white supremacy has socialised them intoâthat they know what is best for non-white women and their job is to save us from ourselves. This must occur before they can even begin to think about their membership in a sisterhood that is capable of freeing all women from patriarchy.
Post from the White Tears/Brown Scars: How White Feminism Betrays Women of Color forum
The language of the White Saviour is not one of liberation or sisterhood: it is a language of imperialism. Nothing gives away a White Saviour Complex like white women rallying to âsaveâ brown women despite the gruesome history of what âsavingâ has entailed. White women have to free themselves from the lingering notion that white supremacy has socialised them intoâthat they know what is best for non-white women and their job is to save us from ourselves. This must occur before they can even begin to think about their membership in a sisterhood that is capable of freeing all women from patriarchy.
crybabybea commented on a post
"Respectability requires not just a stiff upper lip, but a burying of yourself inside your own flesh in order to be able to maintain the necessary facade. It requires erasing your memory of how it felt to be hungry, cold, scared, and so on until all that is left is a placid surface to mask the raging maelstrom underneath." I could highlight every single line here talking about respectability politics. The last few election cycles (U.S. based) there have been tons of conversations about biting your lip regarding x, y, and z concern to preserve a certain face. I think we often forget that people aren't just bringing these things up to be difficult but because they've experienced the pain themselves and that's not always so easy to just push away.
crybabybea commented on Fiachira's update
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Fantasy and Sci-Fi with a Side of Romance
Bronze: Finished 5 Main Quest books.
crybabybea finished reading and wrote a review...
A middle finger to climate change deniers, and an accessible resource for those seeking to understand climate change and cut through the myth and misinformation that have taken over the narrative. I initially approached this as a scientific text, expecting a deep dive into the scientific effects of climate change around the globe. This book is actually a warcry and a stunning piece of activism that simultaneously invites new people to the fight while denouncing the systems that began the problem in the first place. While there are plenty of scientific stats and facts, and it's especially useful for learning about how climate change works beyond "the earth is hot", it's not actually the main focus of the book. In fact, most of the scientific sections will be familiar to anyone who has already done even cursory reading on climate change. Instead, Greta Thunberg has gathered some of the most respected scholars, scientists, and activists to call out corporations, politicians, and people who protect profit at the expense of the early demise of our planet. If you can think of a myth commonly used surrounding climate change, this book debunks it, and it does so in a way that even those new to the conversation can jump in and form a better understanding. Especially, this book shows that the myth of "scientists not agreeing on climate change" is 100% bullshit funded by fossil fuel interests. I really like the structure of this book. It's organized in a way that makes it easy to reference, and written with such accessibility when it could have easily veered into obtuse academic language. It's organized into 5 main parts: 1) The basic facts of climate change 2) The statistics proving these facts 3) The possible (and already ongoing) ramifications of climate change 4) The steps the world has already taken to combat it 5) What still needs to be done by governments, corporations, and individuals The first 3 parts of the book get rather repetitive when reading them in quick succession, because they often reiterate the same points or use similar statistic evidence. The repetitiveness is the point, though. How can we keep denying climate change, and keep denying what scientists know about climate change, when it's so clear the the scientific community agrees across differing backgrounds, political leanings, and areas of research? What I especially appreciated is the constant focus on systemic change, and rightfully blaming politicians and corporate CEOs who work in tandem to spread misinformation to protect their own bottom line. Although there are a handful of essays discussing what individuals can do on a micro level (advocating, lifestyle changes, due diligence), Greta's intentional curation and positioning of each essay always pulls the discussion back to the real issues of capitalism, colonialism, and imperialism. The essays exemplify that individuals can do their part to help, and understanding science is the first step, but the real change lies in political education, activism, and dismantling harmful systems that have overstayed their welcome. This isnât a book designed to be liked. Itâs designed to be undeniable. And it succeeds, over and over again, until no one can claim they didnât know.
crybabybea started reading...
White Tears/Brown Scars: How White Feminism Betrays Women of Color
Ruby Hamad
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Fantasy and Sci-Fi with a Side of Romance
Gold: Finished 15 Main Quest books.